tag:blogger.com,1999:blog-650289478442133391.post6745148725808161132..comments2024-03-24T16:53:02.846-07:00Comments on Five Hundred Pound Peep: Mental Health and Severe LipedemaFive Hundred Pound Peephttp://www.blogger.com/profile/05862707335431442713noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-650289478442133391.post-39247749282323622182019-10-12T08:47:46.947-07:002019-10-12T08:47:46.947-07:00it's too bad you lost your doctor, I hope you ...it's too bad you lost your doctor, I hope you kept paperwork on your diagnosis. yes it is hard to find doctors who know anything. Make sure to seek out an MLD, they tend to know more then some of the doctors. Yes I understand being blamed for weight sucks. I am glad you can still walk and take care of yourself, try and stay mobile as possible. Five Hundred Pound Peephttps://www.blogger.com/profile/05862707335431442713noreply@blogger.comtag:blogger.com,1999:blog-650289478442133391.post-8868415717718148912019-10-05T14:16:39.809-07:002019-10-05T14:16:39.809-07:00Where I live , Florida, the only Dr. that diagnose... Where I live , Florida, the only Dr. that diagnosed and treated Lipodema has quit. I had a vascular Dr, that said he did. I went to him and he didn't know as much about it as I do. I get depressed from dealing with so much pain. Gaining weight and not able to lose it is a downer too. Of course , being blamed for the weight gets frustrating. I'm single with no family around so have no help . I have friends , but they have there own medical issues. We're all seniors on limited income. I do my best to keep a positive attitude. I am still able to walk and take care of my self. God is in my life and I thank him for my mobility. Diane LaFavehttps://www.blogger.com/profile/09133049731984120415noreply@blogger.comtag:blogger.com,1999:blog-650289478442133391.post-23637927771568271812019-05-30T16:03:32.304-07:002019-05-30T16:03:32.304-07:00Hi Beth, thanks for your post. Yeah these issues a...Hi Beth, thanks for your post. Yeah these issues are ongoing. I am glad we can find each other now on Facebook and I know other people with Lipedema on Facebook and elsewhere myself. Yes some of the medical community is starting to get it, but it is taking some time to happen. Too many have been misdiagnosed worsening the condition, too many are still judged, and suffering and not knowing what is wrong. The fat shaming is horrible. I have had the experience of posting about Lipedema on message boards to be shouted down by entire groups espousing fat hatred and that it is a "made up condition" by fat people who just "want to make excuses". All this takes a mental health toll. I do hope there can be more education out there about this condition. I do think we need to stand up for ourselves and say "no more: too. We have internalized oppression to overcome given the severe prejudice that remains against overweight people in this society, but it must be done to even protect our health and future. I agree this shift can be made too. Thanks for your post :)Five Hundred Pound Peephttps://www.blogger.com/profile/05862707335431442713noreply@blogger.comtag:blogger.com,1999:blog-650289478442133391.post-28897998074599933072019-05-28T08:08:45.573-07:002019-05-28T08:08:45.573-07:00I can related to every item you have written about...I can related to every item you have written about. I think many of us can. What saddens me most is that you wrote this 4 1/2 years ago... and that even now, these are still issues many of us are facing. What has improved, in my opinion, is that way in which we can now all find each other and support each other.... especially online in groups, like on Facebook. Also improving (but still a long way to go), the medical community is starting to have the tiniest bit of understanding. For far to long, we all have been hiding in the shadows for many of the reasons you stated... fat shaming, lack of understanding about lipedema, not being believed.... The time has come for us all to take a stand and tell the world about our disease... to stand up for ourselves, to tell people they are wrong. This will be very difficult as it requires a shift in consciousness for us all. A shift to believing in ourselves and valuing ourselves. This shift is hard... but we can do it! And, if we stand together, it will make us all stronger. <br /><br />Thank you for sharing and giving a voice to the darkness of lipedema. <3Bethnoreply@blogger.comtag:blogger.com,1999:blog-650289478442133391.post-89904498797377356332018-04-13T07:28:07.483-07:002018-04-13T07:28:07.483-07:00Hi Mary, thanks for posting. Oh I have been told I...Hi Mary, thanks for posting. Oh I have been told I have a pretty face too, always makes me cringe. Sorry that the medical community hardly recognizes Lipedema in Canada I hope that changes soon. Yes do not beat yourself up. I know we all have gotten far too much shame and blame, and need to be kind to ourselves. Take care. :)Five Hundred Pound Peephttps://www.blogger.com/profile/05862707335431442713noreply@blogger.comtag:blogger.com,1999:blog-650289478442133391.post-34872073159744882852018-04-12T11:40:41.391-07:002018-04-12T11:40:41.391-07:00Thank you for sharing. If one more person tells me...Thank you for sharing. If one more person tells me I have such a pretty face but.... I too, am stage IV and very close to losing my mobility. I have the diagnosis from a Vascular Surgeon but in Canada the medical community hardly recognizes it. Sometimes I continue to beat on myself for having Lipedema. Thank you for the reminder that I need to be gentle with myself and get the support that I need. I really needed to see you post. Hugs and thanks again!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-650289478442133391.post-41081328269728448032018-02-07T00:18:08.163-08:002018-02-07T00:18:08.163-08:00Well said. You brought up many important issues fa...Well said. You brought up many important issues facing women in the lipedema community.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-650289478442133391.post-26251900759249218292016-07-20T06:06:28.112-07:002016-07-20T06:06:28.112-07:00Sorry you are doing so badly. I hope you can reach...Sorry you are doing so badly. I hope you can reach out to a counselor or someone in your community. Email me too if you need to: fivehundredpoundpeep@gmail.com. A diagnosis did change my life as far as the medicos were concerned. A charge nurse even begged me to go to Mayo that's what hours of observation at home got me before I was diagnosed. Go to a cancer center in your region and find a MLD, they can start you on path to diagnosis with doctors backing it up:<br /><br />https://www.clt-lana.org/search/therapists/<br /><br />This disease can be a horrible one and is progressive. The emotional factors of it can be very very difficult. I have struggled with depression a long time. I have had to go to counselors and belong to a support group for depression. I hope you can reach out too, there are people out there who will understand.Five Hundred Pound Peephttps://www.blogger.com/profile/05862707335431442713noreply@blogger.comtag:blogger.com,1999:blog-650289478442133391.post-64271956385051311262016-07-19T23:07:52.929-07:002016-07-19T23:07:52.929-07:00Thank you for this post...i searched for lipedema ...Thank you for this post...i searched for lipedema suicide for probably obvious reasons...i think i have stage iv as well and am having a frustrating time getting a diagnosis. I hope a diagnosis will change my primary care provider attitude toward me but idk. God bless you and your blog it helps me so much tonight to know at least I'm not alone with lipedema and grief/depressionAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-650289478442133391.post-51828179341888697332015-01-21T11:46:38.576-08:002015-01-21T11:46:38.576-08:00Thanks Daphne. Yes there are a lot of issues. I th...Thanks Daphne. Yes there are a lot of issues. I think the lipedemics with supportive FOOs fare a lot better then ones who have sociopaths and narcs surrounding them. The irony of the illness is that trauma and abuse worsens it. I agree about the fact of us coming close to any sanity being a miracle.Five Hundred Pound Peephttps://www.blogger.com/profile/05862707335431442713noreply@blogger.comtag:blogger.com,1999:blog-650289478442133391.post-47803549340322486522015-01-21T09:57:22.766-08:002015-01-21T09:57:22.766-08:00Exactly true. Thank you for telling the truth. It ...Exactly true. Thank you for telling the truth. It can be even worse for the woman with lipoedema when/if psycho-/sociopaths are in her life. The fact any of us come out close to any sanity is a miracle of miracles.Daphne Yvonne Bradshawhttps://www.blogger.com/profile/04505781328962446837noreply@blogger.com