The Fat Hatred of the Lipedema World and Whitney Wants Weight Loss Surgery

2014 study on the hardships of high stage Lipedema. I may have even participated in this one but know I did others--I was diagnosed in 2014.

Where are the size acceptance people are when it comes to the Lipedema world? I seem to be the lone voice. Did all the other supersized stage 4s give up and walk away from these Lipedema groups on Facebook? If they did, I don't blame them. It's weird the world is burning and Covid is spreading but people stick to the "thin is in" religion even though the gyms are all closed and our activities have all been curtailed.

I try to ignore the Lipedema boards but do read to find out the few decent medical facts.  More caution is needed. I have noticed a large one has become worse than Weight Watchers with the newly thin although with still puffy legs under their thinness all bragging about their weight loss. This isn't my first time complaining about fat hatred in the Lipedema world, but it's worsening. I need to stay away from these places for my mental health.  On this go around, one snottily wrote, "Weight loss is not impossible with Lipedema!". She looked like a size one or so on top maybe a size 6 or so on the bottom. She wore a bare midriff top too. My settings were changed so the postings aren't visible unless I decide to go over there. Yeah there has to be more of a firm line.

The diets they push have grown more extreme too over the last year. I would post a few disagreements. I do not post to this blog because I want to keep it anonymous, but basically I was ganged up on. The thin at any cost brigade propeled by a society that backs up their hatred of fat people never gave up. Things worsened with more women bragging about giving up every carbohydrate, or eating the Carnivore diet. One woman claimed she only eats only 4 hours a day from 2pm to 6pm, she must not experience hunger pain, making that doable for her intermittent fasting. Another one decided that eating every other day and going completely without food every day in between was her answer. For years, I have been ignored when talking about the degree of hunger I cope with. I have hunger pain now but am pushing lunch back on purpose to spread food out. How bad will these groups be next year, will some have attained Karen Carpenter's level? 

Did size acceptance die? Oh it's still out there, but it's been cast out of the mainstream.  Everyone got fatter, and being fat was painful so now they are pulling out what used to be considered eating disordered behaviors for the anorexic side of things. When your Lipedema boards read like pro-ana boards with people bragging of going days without eating or eating only meat than you start to wonder. Their diets would kill me too. The kidney stones from the Carnivore diet would bring a painful death. This where the majority of the Lipedema world has gone now. To question any of this too, makes you a non-person in those circles, they only care about weight loss success and nothing else. They will definitely shout you down. My marginalization is so complete there, I've never seen anything like it. Maybe I'm too Aspie, to please a group of looks oriented women, or they seem me so much as the "other" because I am "so far gone" but it's disappointing beyond belief. My long time readers know this about me, but sometimes I hate being female, always having to worry about looks or being expected to obey this societal mandate that my body and how it conforms should be the central motive of my life. 

If this was a man's disease, the medical world would looking into the endocrine causes, and why the lymph system failed, or why some of us get fibrosis and lipomas, diets would not be seen as the answer. Because it's women, all the Lipedema boards read like Cathy comics from hell. They focus on fat even though the body is full of fluids. Weight loss is everything. I don't even see anyone talking about infections or pain on there anymore.

How are the newly poor from Covid supposed to afford their special diets? Class issues and Covid barely exists on these boards with the sole focus being weight loss. I am scared about my weight being tied down inside so much due to winter. My parathyroids are going [again] and doctors are doing their usual linear by the numbers stuff and not explaining why I am getting hypercalcimia. My theory now is that the high levels of uric acid and kidney stones could be part of another endocrine problem or issue that is being neglected. 

The doctors all looked burned out. So I am afraid of having another complicated issue happening now. I am supposed to get a PTH test done in March. This may be yet another issue I have to fight for diagnosis on. Hmmm that one doctor back in the 90s thought there were polyendocrine autoimmune issues. The doctors have turned cold, maybe for good reason and have even less empathy. All the fat hating eugenics related to Covid have not helped, since we have been told without hesitation we would be the first on the triage list. It's scary out there.

I don't feel support in the Lipedema world except by a few friends I met online who have it. The punishing words and put downs remain the same. Following my ACON rule of staying away from people who make you feel like garbage, I've withdrawn from the online boards more and more. While I meet a few like-minded women, they've been marginalized same as me, silenced as well.

Only the thin or those pulling out all stops from starvation to 6 hours a day in the gym are considered "worthy" and you can see the ableist pecking order where the smaller lower stages get all the praise. Lipedema puts some women in nursing homes and wheelchairs, and I have a few friends who have died very young I met online, but instead of the seriousness of this condition being dealt with, we are told diets are the answer! It pisses me off. If this illness is supposedly all about fat and diets, how are we going to get real treatment or help? Why do they ignore the pain for so many of us, where doing more makes the fluid come on? It's far more complext in higher stages.  I had to collect urine for kidney tests for 24 hours and noticed I took off 1600 fluid ounces after using my Flexitouch. How is that normal? That's a few pounds of pee! I poured it off into the collection jar. 

A lot of the women seem like normal sized women, who aren't even fat but may be low stage 1s who got a surgeon to give them some liposuction and came on to model their near normal or normal bodies. There's no support there too. Kicking around the fats seems to be a new sport for more budding narcissists now.

A few times I talked about size acceptance and fat liberation but I tell those are rare and refused concepts in the Lipedema world. I was wasting my breath. I'm not sure how to proceed. Maybe I dreamed of acceptance and fitting in, in Lipedema circles. I got banned from one stage 3-4 board because this one admin decided she didn't like me. Some of this was my mistake, asking if it was right for someone to be a member of the board who was trying to sell Shakeology diets to us. Sometimes us Aspies get in trouble with too much truth-telling. Groups don't often like that kind of thing. Ex-scapegoats are warned to be cautious and "pick their battles". Anyone hear anything about Shakeology lately? Another fad diet in the dust bin, sooned to be joined with Keto and Carnivore.

 Reddit is an extreme fat hating world too. If I mention anything weight or obesity related, I get my head ripped off. The default is that you are an overeating pig and deserve what you got. I can tell that horrible show 600lb life has just added to the fat hatred. Dr. Now and his producer son, have not presented super-fat people in a positive light. Are millennials more fat hating now? I'm not sure. There definitely seem to be more fat younger people. I went to the grocery store with my husband, waited in the car and saw a woman who had to be at least 450lbs in her 20s walking in. The pressure to be thin, definitely has grown higher. Her world did not look an easy one.

Pursing the genetic testing has not been easy. I want to know. Doctors don't always care about knowledge for knowledge's sake, and my Covid overwhelmed doctor from his housebound elderly patients, probably doesn't care about getting Peep her free rare obesity genetic tests she found online. I told him about the website, and even asked the company to send me paperwork so I could make it easy for the doctor and have him sign off. They told me, the doctors had to go through the website. Perhaps I can get a specialist to help. I have wanted genetic testing for years. There is another path to use my Ancestry DNA on this one genetics website, but that will cost some money. For years, I have known something is different, my physical attributes go beyond severe obesity, the near deafness, my small mouth, the way I am built, there's a lot of things that point to genetic problems. 

I have failed at weight loss, even keeping it stable, is all I can do on my usual food schedule, and doing Comcast TV exercise. I marched in place for 10 minutes yesterday and walked some in the hall.  Life on Covid house arrest sucks. Whenever I did venture out to walk around trying to avoid people or go anywhere, I was faced with way too many maskless people. Even today this maskless woman sat out our apartment foyer breathing all over the place.  Living like this is getting depressing and it seems like it's never going to end. I will never forgive the people who did this to us. They couldn't shut down some international flights because the richy riches always get their way.

I make sure to walk a little bit once or twice a week but that got harder. The kidney stones are having me transfer to a near vegetarian diet. I still eat a little meat. New vegetarian recipes have become part of my life.  I put 2 chicken sausages in dish of food we ate for two dinners, so had half a chicken sausage at one meal.   Morningstar and Dr. Praeger veggie patties are on the menu.  Oddly more removal of meat dropped my blood sugars somewhat, down by 20 points. [108 this morning]

 I don't expect weight loss from this. It just doesn't happen though for normal people, the calorie deficient would probably take a little off. It's to keep from dying of a kidney stones. The day the fascists attacked the Capitol is the day I got a giant one, with back pain and all. I gave up red meat 5 years ago. So this is lowering of other meat.

Whitney Thore who I still believes has undiagnosed Lipedema is buckling under pressure, and now wants weight loss surgery.  She needs to not waste her platform and to refuse the pressures of our fat hating society. More and more I think her show is meant to prop up the diet industry, instead of challenging it. She should have it out with her producers and turn things around.

All the worse stereotypes about fat people are promoted by her show, knowingly or unknowingly. Fat people are childish, we see Whitney running to her parents for every little thing. Fat people don't deserve romantic relationships the same as others, so we see Whitney cling to Buddy as her sloppy seconds who treats her like garbage, uses her for free rent and refuses to commit. She then had her rumored to be fake relationship, where her now ex-finace Chase cheated on her and had a baby with another woman. Now we see the usual gambit, of the woman still hated even though she exercises all the time, giving in to the diet industry juggernaut! Weight loss surgery as the supposed answer. Hopefully she will back away and this is only a one show venture.

Why doesn't Whitney pursue more answers? She has the cash to go to the weight loss program at Duke University, or another inpatient diet place to get some weight loss on track. She could have doctors figure out what is going on. She could see the ultimate PCOS specialist in the world, maybe they could put her on an androgen blocker like I was which made my weight loss possible down from 700lbs. I was forced off this drug 5-6 years ago due to other medical issues but it could help her.

She could be stabilize at a decent midsized weight if she got medical issues dealt with. She has resources and a platform many others do not.  She has pain, and obviously she can't do everything the thin people do, she's succumbing to the pressure. It's another Carnie Wilson trip: "get weight loss surgery". Whitney should not be talked into the sleeve or the RNY, go for the D and S [duodenal switch], risks and all, at least she won't have the embarrassment of the later regain to come since the metabolism sinks in so many. I hate all weight loss surgery but if I was forced at gun point to do it, I would want the one that works.

Remember that show Ruby? That was another show about a superfat woman, that one focused on weight loss though. She weighed 700lbs and lost a big chunk, I think around 380 or so in her case, but when she stopped losing and had some regain they removed her show off the air. Supposedly she lied about her weight.

Things are getting worse for fat people. I still plan to rejoin NAAFA, though so many bills got in the way for now. It is still on the roster. These weight loss pushing people all they do is make me depressed. Telling people they are pieces of crap doesn't help anyone get healthier. Somehow this is still the way they want to do it with fat people. The abuse out there is getting worse. I can tell. Hell just my moniker fivehundredpoundpeep brings out the haters. They are still sticking to the failed answers of the last 40-50 years.

I feel for the woman who wrote this article last year talking about Lipedema. One thing I notice they never talk about is the pain of Lipedema, everytime I move it hurts and it has taken a toll. It's always with the attitude "fat ass go lose weight --no matter what it takes", "even if you have to go without eating a few days a week". That's basically the message of the majority of Lipedema support groups I've been on! I fear for her if she discovers what some of the Lipedema boards are like. That's going to be a blow. Hatred for obesity has grown so bad, even if you have a rare fat disorder, it doesn't matter, you better be thin or else!

Whitney would be better off to eat three healthy meals a day--get best food she can, portions, lower meat, lots of vegs, exercise a certain number of days a week, food schedule with no free eating inbetween, and let the chips fall where they may and make her size a non issue. Go join NAAFA and raise a middle finger to the diet and weight loss surgery pushers.

Many of the people here don't get that fat people have been told they are "not enough" their entire lives, and blamed and shamed. Doesn't make any of them thin, just fucks them up inside. I like healthy food, exercise, and things like that but the poison, and the drip drip drip of "you suck" wears down on fat people. I've had my fill. Sometimes the internet can be a toxic place. One needs to be careful on here.  That Lipedema board sent me into some more bad feelings, the feeling of "never enough". Sometimes I hate this world, petrified of weight gain by being locked in the house, not able to go anywhere without fearing immediate death because so few here wear masks. We now have an entire year lost.

They all praise the newly thin like they are gods and people like me are no one. This is one sick society. I will be okay and remind myself self-compassion is the answer. I can only do what I can do. I'll do the exercise and go make myself some tofu patties with zucchini for lunch and eat a vegetarian burrito with peppers for dinner and will know all my haters will consider me a liar and that I huffed down a few cakes and pizzas but they never believed me all these years so what does it matter at a certain point? 

And you see that in Whitney. She annoys me as I have written about her possible narcissistic traits but I also realize how she was influenced and the pain they unload on fat people that is never ending.  Since she was a normal sized person for most of her young life, and then skyrocked in weight during college, it messed her up. This is more evidence to me of the possibility of her having Lipedema, remember I'm the woman who was midsized until my early 20s but than had my huge weight gain. It's weird to see her up through college being normal sized.  I hate to see her doing the weight loss surgery thing, she's giving in the fat hating society that's basically abusing her for the sake supposedly of "health". I still say she has Lipedema. It's sad even with all her body positivity stuff, she has never heard of the basics of fat liberation. One can tell she feels like she's "not enough" inside, with her conservative parents that wanted a thin and petite married woman with babies for a daughter, and with a society that denigrates her even as she has achieved a level of fame. She has a group of nice friends hopefully they are real and not just for the show.

Even if she figures out she has Lipedema or got diagnosed with it, she better be careful. That world is making weight loss everything too though Lipedema does more than give you a higher number on a scale. It's still open season on fat people. If anything it's gotten worse in the last 5 years. The Lipedema world has a few decent people like Dr. Stutz but from what I am seeing, it's become abusive, with the shoving of diets down people's throats, that gets worse year by year. Why has the Lipedema world grown so toxic? Why are people even with success and fame, feeling like they are "not enough"? Things shouldn't be this way.