Monday, June 11, 2018

What I have Been Up to Lately

I'm still living oddly, I will go and do some stuff and then collapse into bed. It's a strange way to live life. My intent is to try and get more done and balance things out but the health is a constant battle. There was one evening I just wanted to lay in bed and not get up and do all these medical things, I have to be cautious of that. The rheumatologist never returned my calls, maybe one option is having the doctor do the tests the specialist would have done. The bloating and pain from Lipedema can be maddening, one day when I was out and about a little bit, I was limping and hanging over my walker, but you know, "I WANT TO HAVE A LIFE" even if it occurs in only small segments. This week was a non-housebound week, so decided to do stuff in between collapsing in my ever used bed.

1. I went to a Fan-Comic Con. They had cosplay dressers, comics, a theatrical battle team and a lot more. They advertised some anime conference in a town about an hour from here. Wish I had money for that kind of travel but that's a small hobby, I like to read anime, with the graphic novels. Japanese culture fascinates me. There were some one dollar Archie comics to be bought too. My husband enjoyed it a lot too.

2. Sewing may begin more in earnest beyond simple clothing repairs.  I finally had collected some material. Some nice friends donated me some, and some are great patterns. Sewing is new to me, I sewed a stuffed moose in home ec, and some quilt squares at one church years ago. The reality is I need clothes bad, and am going to be naked without any. The plan is to start with some simple jumper dresses. Hopefully there will be something wearable at the end of my ventures.

3. I did a lecture at UU fellowship, this church is far more interactive. One odd hobby I've had for years is studying everything that has to do with religion, it was my informal "major" even in college. I'd go to my art ed classes and then read books on religion during rare free moments. So when I was asked to lecture on the transcendental movement as one of the readers/lecturers, I did so. It turned out well. One thing I talked about is how we have lost the intuition, independence and exploration/value of nature and independent spirits pertaining to this. It was a good experience. Public speaking is not easy for Aspies, I can do it from some of the past teaching experience. For me the motivator is the intellectual pursuit behind it.

4. We are still going to the gym. No weight loss miracles yet, but I think it is increasing stamina. I am worried how I do not lose weight, but only can do what I can. I think its a good sign when you can increase weights a little bit too, even though that is slow going. I do hope one day maybe we can join the far closer gym, but it costs a lot more. We are averaging twice a week visits. It should probably be more but with his work, we are doing our best. I may see how taking the bus works to get over there.

The exercise has an odd effect on me like brain feels clearer at the end on some days but then I have to make sure to eat before I go too on the other end because exercise affects my blood sugars. I sweat all over the place which is kind of gross. I hope I can get on more machines.


  1. Do you have a Goodwill store or Salvation Army near you? Any sort of thrift store has really reasonably priced clothes. I'm not talking about resale shops. Sometimes a charitable organization runs a thrift store. I buy almost all my clothes there. The stores I use have ladies plus sizes. It is kind of hit or miss but you should be able to find some things and the more you go you can really build up a wardrobe!

    1. Oh I wish I could use thrift stores, around here, there's NOTHING in plus sizes, I never see anything above a 2 X, and I have gone to 4-5 thrift stores on a regular basis. I found these size 10 X men's shirts I wear on occasion in the winter, over dresses, but thats it in years. I even had the idea, go find some 3 x 4x dresses that would fit on top, rip up the skirts and add to them and found nothing, though probably going to do this with some old dresses of mine. I wish I was more normal sized would go crazy at the thrift.