Tuesday, March 18, 2014

FINALLY AN ANSWER AFTER 17 YEARS!




I was diagnosed with lipedema today.

For 17 years I wanted to know why I had that 400lb weight gain in 28 months.

I have both lipedema and lymphedema--lipo-lymphedema together.

This means I have a different kind of fat cells-hyperplasia of them along with as the lymph specialist explained a broken down lymphatic system. Hormonal disorders such as thyroid and PCOS are known to go with this disorder as well.

Rare Fat Disorders Masquerading as Obesity

Posted by at
Labels:

2 comments:

  1. AnonymousJune 20, 2014 at 3:34 AM

    do you have lipedema and cushing's?

    ReplyDelete
  2. Five Hundred Pound PeepJune 20, 2014 at 9:13 AM

    I have lipedema stage IV, otherwise known as lipo-lymphedema, because stage IV, lymphedema sets in too. With Cushings, I have tested as having high cortisols before, and was diagnosed as having pseudo Cushings years go. I had normal cortisols this year. I am still diagnosed with PCOS/ I found out that with lipedema there can be multiple hormonal problems including high cortisols.

    http://fivehundredpoundpeeps.blogspot.com/2013/04/pursuing-out-and-out-cushings-diagnosis.html

    http://www.fatdisorders.org/fat-disorders/lipedema-description

    It has been hard in some ways because lipedema has no cure, just maintenance and Cushings at least tumor caused has more chance of a cure.

    ReplyDelete

Subscribe to: Post Comments (Atom)