Showing posts sorted by relevance for query Prader-Willi. Sort by date Show all posts
Showing posts sorted by relevance for query Prader-Willi. Sort by date Show all posts

Wednesday, July 1, 2026

"Parents Booked for Murder After 7-Year-Old Son Dies at 255 Pounds"

 

Michigan parents face murder and child abuse charges in death of 7-year-old boy who weighed 255 pounds

Remember when I posted about Christina Corrigan years ago on this blog? That case happened in the 1990s, and she was a teen girl who died at 700lbs. In her case, her mother took her to the doctor, though they said they found her with fast food boxes and in a messy condition. It was always believed she could have had Prader Willi.

 This poor child died in a hoarded-up filthy house, covered with sores, and they said they fed him a bag of chips, some French fries and sugary soda. They look like they were eating themselves so why didn't they give him any normal food?

Malnutrition would have ended his life eventually too.

Both parents neglected him and refused to take him to a doctor even though they went to the doctor themselves. It's sick they all ran to the vet for their dog who got sick that very day, but a poor child covered in infectious sores and with huge weight, is ignored. Both have been charged with second degree murder and other charges.

 Unless they force fed this poor child, he definitely would have had some genetic obesity from both parents and very likely could have had Prader Willi Syndrome. One thing I found out reading about this case is two years ago the doctor they took him to once, wanted them to take him to a pediatric endocrinologist, and they never did this. That alone is serious neglect and not caring about your own child. If the husband is smart enough to do IT for a dental company, he's smart enough to know some basic medical facts.

Why was Casper kept out of school too? He needed to be in special ed to have them help him with his severe non-verbal autism and whatever else was wrong. The 5-year-old sister, the cops wrote, was feral and not even clothed. You keep reading about these cases now where these parents totally neglect the children and if they are special needs there seems to be more chance of it. Joseph and Kendra Duggar both got arrested for child neglect beyond his SA charge, and I've seen suggestions on other websites that they locked their kids up, and didn't toilet train them. Maybe these are just conjectures but their children were taken away for criminal charges beyond the SA charge from Florida. 

What is scary about this case is the father had a good enough job with health insurance. They just let their child die instead of getting him help! Cardiomyopathy by the way can be caused by UNTREATED thyroid disease. It happened to me as I've talked about on this blog many times and almost led to my demise.  I knew about it by my late 20s but around my late 30s/early 40s after we moved here, I remember those times I was getting heart scans almost every two months. When it comes to medical neglect of kids, given my history, throw the book at them! I notice commenters are in shock this child gained 150lbs within 2 years to go to the 255lbs. Endocrine problems or others could have caused that too. Thyroid disease also brings the skin sores, but that could just be from the fact they never gave this poor kid a bath. Other endocrine illnesses were possible too beyond the effects of possible Prader Willi/overfeeding. I noticed one commenter wondered if he died of sepsis, that's very possible given the skin infections. 

You can tell many of these parents just give up on their kids. Why wouldn't anyone give this kid a bath beyond the supposed wet wipes? Sometimes I think autistic kids may be better off being handed to the state in humane institutions [maybe that's an oxymoron I know] instead of being raised by monsters like this. Autistic kids are being abused way too often. Something has gone very wrong. I wonder if they fed him constantly too like if it was a Prader Willi situation just to keep him quiet.  It's weird to see the kid cuddling up to the mother in photos, and then later she leaves him lying in a bed for 12 hours a day and leaves him to die. No one bothered to brush either kid's hair either. If you can't get the kid in a shower/or get him up or lift him or to eat anything decent. Call 911, take him to a hospital or something for goodness sakes! It's another abuse horror story. it makes you wonder where was the rest of the family? Why didn't they report anything? Did they even get to see the kids or did they ignore what was going on and push it under the rug?

It's another troubling story, and this stuff is happening way too much. 

Monday, December 20, 2010

The Betrayal of Christina Corrigan: Thirteen Years Later



I've had a lot of time to think about this case. The year I went on disability [1997] and other health problems from a massive weight gain, is the year this case broke. Fat girl is is found dead on the floor next to some food containers, covered in waste and her mother is arrested and charged with neglect. In size acceptance news, it is the top story for months. It hits me in the gut, because I weigh about the same that VERY year and knew I was dying, and did not know why. For those who are new to this blog, see this entry.

Christina Corrigan was a young girl of thirteen who weighed 680lbs at the time of her death. Her mother later was arrested and charged with child abuse pending accounts that Christina had been found covered in bed sores and in feces. Marlene her mother was later convicted of misdemeanor child abuse.

Marlene took her daughter to doctor after doctor over 90 times, to deal with her mounting weight. Christina weighed over 200lbs by age 7, she was to gain more then 500lbs the next 6 years. In regards to the trial, one fat activist talked about it on CNN:

HULLINGER: Judy, as you sat and watched this trial, why have you come to the conclusion that obesity is the central issue of this?

FREESPIRIT: Because the mother was not neglectful of this child. The child was definitely fat. She definitely had the bed sores that they claim she had. The problem was that the mother was never able to get any help from the medical establishment.

She took the child to the doctor 90 times between the age of birth and eight. All that she ever got was low calorie diets and told to exercise her. She never got any kind of medical help. After you've gone 90 times to the doctor and gotten no help, why go again?

The problem is that we assume that there was something there for her. There may have been, but she wasn't getting it where she was going, and she was a member of an HMO.


The people that failed Christina was not only her mother but the medical establishment, she had been taken to doctors with no help, and only blame. It is interesting to note that her mother received blame to the criminal end, unlike the sympathy a woman would received for a child disabled by another condition. One thing, the claims about the urine and feces are a joke, everyone who dies, loosens their bowels.

The pure neglect of health problems of the severely obese and the myths that surround them grow worse and worse. No normal 13 year old girl would have been able to eat her way up to this weight. It is interesting to note that this girl up to age 3 was on a medication known for weight gain for the treatment of grand mal seizures that can bring in pituitary involvement. My conjecture today is either this medicine affected Christina's metabolism or Christina had undiagnosed Prader Willi syndrome, a genetic disorder that affects hunger and metabolism and can lead to severe weight gains in children. It is obvious too, that Christina Corrigan lacking mobility and worse, her mother was struggling to care for her.

Cardoza, the lawyer in the case admitted that medical problems not mere overeating probably contributed to Christina's weight. Her former doctor as Cardoza attested on a talk show I watched {Leeza}, said "Lady, there's nothing wrong with your kid, quit feeding her."
Sadly Christina's doctor blamed a genetic predisposition to gain weight, overeating and lack of exercise. He did some basic tests but ended it after that. His prejudices leading to bad science and what happened to this girl: Lowest common denominator medicine with a giant dash of laziness included! Even a sane person would ask..."What could a thirteen year old eat to weight 700lbs, and would a normal thirteen year old even have that type of appetite? The answer to these questions are in the negative, but when it comes to fat people, hatred overrides common sense.

Marlene attested to going to doctor after to doctor until giving up. If she is guilty of anything perhaps that is it, but the doctors are just as guilty then.

What gets me, is if the doctors didn't play the game of moral judgements of refusing to find a cause of obesity based on prejudice and the claims of immoral behavior and gluttony, what is ironic is at least some supersized people if treated with the correct medical insight could avoid the special challenges of being super sized to begin with.

Christina Corrigan for her weight alone was denied access to a normal education. From the facts of the case, one could deduce, that money was tight in the household. Her school which was placed at the top of a hill required students to walk up several flights of stairs, that Christina was incapable of surmounting. [Wonder how many disabled or older folks, can't go up them either?] NO special education or other arrangements were made. She dropped out and had to be home-tutored.

The possibility of Prader-Willi syndrome was immense. I found it odd, how no samples had been saved at her so called autopsy to do a DNA test. In Prader-Willi syndrome there is high tolerance to pain and often times skin-picking which could have accounted for all the bedsores all over Christina. The defense also pursued the avenue of brain damage from her treatment with Phenobarbital.

Only a cursory examination was done at the autopsy of Christina. The coronor looked no further then for outward visual clues denying the opportunity to find out the actual malady that affected Christina. No samples of her tissue were taken.

Christina was treated in life as she had been in death. After failing to find the reason for her extreme weight, her main pediatrician referred her to a nutritionist. Cardoza, the attorney said Dr. Ray should have realized something more needed to be done after she saw Christina's weight ballooning for six years. "My God!", he said outside the courtroom, "If that wasn't a pattern, what is a pattern?"
While her mother perhaps failed her in some ways , many other people were just as culpable, the school in failing to provide an accessible school or classroom, social services for not providing home health care, the nutritionist in not realizing this was a problem that no diet counseling in the world could solve,the doctors in not adequately diagnosing the disorder or providing other case management or help.

Today I ask, has anything changed? Are there going to be new Christina Corrigan's? Will a new young woman watch the weight go up up up, only to be blamed and vilified and not believed? The sad thing I think is probably so.

Update to this article: 2018. I was diagnosed with Lipedema stage IV in 2014, so I was correct that something more was wrong, when I started this blog in searching for what my true medical issues were. I survived the fat bigotry, just barely, Christine did not.

Thursday, August 22, 2013

Why Don't They Study Prader-Willi To Understand Obesity More?

One rare genetic condition which brings out a very slow metabolism and also increased hunger is Prader Willi. I talked about it some on the Christina Corrigan article.







Maybe they can break the code in why people feel hungry [on lesser levels] for food their body does not need. Maybe they can break the code with satiety and metabolism issues to begin with. Hunger is painful and one can tell it with the Prader-Will folks in these videos!

 

Thursday, April 20, 2017

The Fat Virus



Fat-haters hate science too, so ignore the comments below this one on youtube. I wrote about this theory years ago. This is definitely a video to check out. Obesity is like epilepsy was years ago when they deemed people who had it as all being possessed. I believe that there will be more scientific vindication for obese people as time passes and not just for people who have disorders like Lipedema or Prader-Willi. No one wants to be severely obese.

Thursday, September 8, 2016

Christina Corrigan WAS Betrayed.


See Post Here

Fat Logic, the home of the brain-dead CICO believers, keep screaming "Eat Less/Move More" even when it comes to Christina Corrigan. In their stunted world, there's no such thing as rare diseases that can make people fat. I have seen even the "reality" of Lipedema and Cushings argued over at that place because they are so invested in their world view of shaming and blaming fat people. The idea of any disease swelling up the body, is anathema to a bunch of brainwashed fat bigots. 

I find it funny how they hide all the links to my blog, which I don't seen done when it comes to other things they discuss on there. There is definitely a reason for it.

What is funny, some do admit, I could be right about her having Prader Willi. I also wrote she could have hypothalamic obesity or another disorder.  They ignored that part which doesn't surprise me. So the poster rants and raves about my "ridiculous" comments and then half the commenters admit I could have been right.

Since I wrote that article some years ago, some of my views have changed. I believe the girl should have been hospitalized upon the first 100 to 150lbs. Why wasn't she? Anorexics are. Then the hospital could have figured out what was wrong, and how to deal with it. If the mother was over-feeding her, yes put a stop to it!

I still stand by my belief, that she had something physically wrong that remained undiagnosed and the professionals surrounding this girl absolutely betrayed her. 

Christina Corrigan died in 1997. That was almost the year where I hit my peak weight. It's been almost 20 years, and nothing since has changed. It's the same lies. They can call me crazy all they want but they got nothing!

The Betrayal of Christina Corrigan

Saturday, June 13, 2015

Crushing Weight: Jacob's Story



Was Jacob tested for Prader-Willi or a Lymphatic condition? How about Momo Syndrome? His head is extremely extremely large. https://en.wikipedia.org/wiki/MOMO_syndrome

I am glad he could get 200 off, but I hope that will last. It worries me they seem to ignore finding the root cause and always take someone running to WLS. He obviously has serious metabolic issues. My worry is that his metabolism will drop. I hope he can maintain in the 500s, but that is a hard place to be. This distresses me when you see someone that has some type of obvious rare illness bringing severe obesity and the answer is WLS.They need to explore the root cause and while he should do what he can in healthy eating and exercise, he has something beyond what a "healthy lifestyle" is going to fix. 

Saturday, March 3, 2012

Some Morbidly Obese People Are Missing Genes, Shows New Research

Some Morbidly Obese People Are Missing Genes, Shows New Research



A small but significant proportion of morbidly obese people are missing a section of their DNA, according to research published February 3 in Nature. The authors of the study, from Imperial College London and ten other European Centres, say that missing DNA such as that identified in this research may be having a dramatic effect on some people's weight.

I found this study very interesting, I actually have wanted genetic testing, but wasn't sure how to make it happen. My body is so 'different", even my mouth is extremely small. Even before I have pondered if I have some form of Prader Willi-unable to lose weight like a normal person and keeping on so much weight. As as I have said many fat people's bodies work differently especially in these higher weights.

Sunday, November 1, 2015

Australian Prader-Willi Children



They need to study this disorder to get to the root of fat and hunger. This disease proves to me that obesity has a massive hunger component where fat people are "hungrier" for the ones who eat more food, instead of having lower metabolisms that doesn't burn the food off. Think about it these kids are driven to eat even with the resultant damage to their bodies. For all the shame and blame game people, who I try to tell, "None of us choose to be fat", why don't they get it.

Monday, December 27, 2021

It Drives Me Crazy That Tammy Left Her Rehab



Around 10 years ago I actually got the application to go into the rehab Tammy Slayton was at, but elected to get at home PT, and other programs and got diagnosed with Lipedema stage 4 in 2014, and got treatments so was working on a lot. I lost a little back then got PT, occupational therapy, my hospital bed and other medical needs met locally and was doing better so did not go in. Remember these are the therapists who helped get me diagnosed. The PTs even noticed they saw visible swelling when I was up and moving around and this was put in the record.

There's times now I consider going into rehab because I am still so heavy and now getting old. It's complicated for me because of major money issues and the fact because I am still mobile, and don't need to be in a wheelchair, I may be deemed unqualified and insurance may not pay for it. Covid worries me too. If I won the Lotto tomorrow, I definitely would sign up for some type of program.

I asked my lymph therapist about a Lipedema/lymphedema specialized rehab but she told me I already do at home what they would do for me. I spend 2-3 hours still a day on leg and body fluid removal. My friend who recently died of cancer spent weeks in rehabilitation and told me, eating is not your problem, and your food quality at home is far higher. You aren't going to get health food, vegan and vegetarian food at most rehabs. This worries me too. I get sick so easily from what most call "normal" food. I've asked doctors to stick me in the hospital to get a 100 off multiple times before. 

The option is far more complicated for me, then it was for Tammy. My weight has been "stable" [515 and 522] are the last weights but obviously not budging even though I am following nutritionist recommendations and also improved kidney/UCTD problems via increased vegetarianism. I worry about my mobility but obviously it's much better than Tammy's is.

That place she was at Windsor is known as one of the best obesity rehab in nation for the supersized and extremely obese. Tammy was dumb to leave, she should have gotten 200 off in her case for functionality. Their program was working for her. 

Here's one thing Tammy has tons of support that many supersized people do not have. She doesn't realize how bad it could get if she did not have that family of hers. I have a husband who is loving but have no family if something happened to him, I would have no one. My family scapegoated me and hated me for being fat as you all know.  My life did improve going no contact. There was no patience for my obesity problems, medically caused or not. My family was well-off and wanted little to do with me even when I was in contact. 

My mother refused to be seen in public with me for 20 years. My siblings had nothing to do with me too. As my long time readers now, even before I went no contact, my sister would do her 10 minute stop offs on the way home from my mothers house and even those stopped. My brother refused to visit and I had no money to visit from my end. Despite her family's endless faults, Tammy's family remained involved in her life. Her sister Amy and Chris while sometimes ignoring their own serious problems or projecting onto her, still have been there for her and tried to help her. She seems to take that support for granted same as she takes the support of social workers, therapists and other programs for granted. 

Tammy is throwing things away all of us wish we could have. I need a therapist now for some anxiety/PTSD related problems--Covid hasn't been nice to. Even the OCD I overcame when young is knocking back at the door a bit. Also continuing recovery from extreme religious cults, while society seems to be going apocalyptical is another issue. I'm hanging in there with my UU church but the love of the Covid narrative there has been very HARD on me. The UUs know about my young adult life in their church and about my time in evangelicalism, but I never talked about the extremes of my fundamentalism. It was just too personal and complicated. 

I can't afford a therapist. The money isn't there. The state people are so overloaded in my area, unless you are hallucinating, they aren't going to have the time or the space. She sits there with a therapist and refuses to answer questions and pouts like a three year old. Maybe she is three years old inside. 

 Even keeping her HOME, to go to rehab, is RARE. That's one thing disabled people lose their apartments to go into rehab, because the rehab is paid by your disability check and you get 30 bucks a month of spending money like for makeup or maybe a book or two. Yes I know how it works. Some households need two incomes to remain afloat. If one income disappears, the household would collapse. That is true of my own.

Tammy has money, family to maintain her home and she ditched the place after 60lbs WHY? While still on oxygen and in a wheelchair? Her eating addiction alone she needs stability and a structured environment. I also find myself wondering why she still has her own guardianship. People know on here, I have warned of aspies and others being abused by seized guardianships, but she seems to be someone with some severe learning disabilities and other problems that is not making fully rational adult decisions. She is someone that system was made for. There's times when it does have a reason to exist and perhaps this is one of those times.  Also I don't think CICO based will power dieting is going to work on Tammy, her hyperphagia or extreme hunger is out of control. She definitely needs more medical testing, perhaps for Prader Willi and other related conditions. I am continuing my battle to try and get genetic testing and more treatment for myself. There's a point where I know I can't fix this. I did what I could. Tammy is in another place where she doesn't seem to care about herself. That's something therapists need to address.

My search for an extreme Bariatric specialist is now ongoing for myself. I want more answers why I am maintaining such an extreme weight and dealing with such hunger pain. After I found out there can be help that isn't always weight loss surgery, I thought I would search for this type of specialist. Someone eating the level of calories I am eating should not be at this weight. I cried when I had to quit my gym you know over stupid Covid, I paid the fees for 18 months hoping I could go back. I'm trying to figure out where Covid is at now, because I have to get some exercise outside of the TV stuff. I'll go rejoin the gym or find another as soon as I can. 

Tammy has access to full exercise facilities and even a pool. She's already had Covid, so she had natural immunity and didn't have to worry about catching it anymore. I have lived socially isolated and wear masks, and it's taking a toll on me psychologically and medically. 

Tammy gets care and help many people could not ever get who are supersized. I do have husband to help me with things, but I noticed Tammy doesn't seem to worry about becoming utterly helpless or bedbound, I fear it, and that is strange to me. Also if Tammy never cooks, does she just order food out? I can spend two hours in the kitchen a day cutting stuff up, cooking and doing dishes. If you are on oxygen too, you are dying. As screwed up as I am with bad lungs--I have to go use my nebulizer here soon for my daily COPD med--I never needed oxygen before though I could one day.  She needed to stay at her rehab. Maybe the family should have just refused to pick her up and say "You need to be there longer" She can't drive so how'd she talk them into picking her up? Her brother Chris, did her a huge disservice.

Getting into rehab isn't always easy if you are super-obese too, she has resources she is spitting on. She needed to stay there. Maybe she should have gone home on a visit and gone back, if she missed everyone. 

Right now Tammy Slayton is on a trach, and many predict she is going to die. I don't find her chances to be that high either. She has severe disabilities both of the mental and physiological type, that have destroyed any wise decision making and seems to be a path to total destruction. She should be in a structured institution or group home at this rate. Sometimes due to my autism and other problems, I know I definitely needed some intense services when I was young, so I say this without judgment.  Tammy's lack of insight and desire to take the help offered could lead to her death. 

I'm trying to figure out what more I can do and what help I can get. It's sad to see someone throw away so much help. 


Sunday, July 3, 2016

Fat Activists Trying to Prove They Can Exercise Like Thin Athletic People



There's a new trend out there, and Whitney Thore followed it too, where fat activists are getting into exercise and doing 5Ks and proving how "healthy" they are and that by doing so they will "prove" it is great to be fat. I do support fat people and others exercising as best they can and doing what they can, but there is something strange about the constant push for proving yourself worthy as a fat person via "fitness" and athletic events by some fat activists. It seems to be a new and strong trend out there.

Some are claiming one fat activist named Ragen Chastain "cheated" on a 5 K race.

https://truthaboutragen.wordpress.com/2016/06/30/road-to-tempe-2016-ragen-the-cheater/

I don't know if Ragen cheated or not but I can't walk 5 miles. Maybe she got in, wanted to "prove herself" as so much of her blog is centered on proving herself to be a great athlete, knew she was in over her had and gave in to temptation.  I'd be putting my thumb out for a car ride! But something worries me here, what are the exercising until they drop fat activists trying to prove? That being fat doesn't slow one down? That reality doesn't exist? That they have to match everyone else in athletic achievements to be worthy?

And why do the CICO believers always claim all fat people are lying, what part don't they GET that even fat people who bang their heads on the wall to go feel the burn, and LIVE the lifestyle they are often told to go live like running 5 Ks often are fighting a losing battle with their own bodies!

I had this discussion at that website:

ME: I am confused as to why these large fat people feel they have to compete in races to prove themselves worthy. I have spoken about some of the healthism in size acceptance. It seems there is some dishonesty in their desire to “prove that they are like everyone else”.

I can’t walk a mile even perhaps a block on a good day and it used to be a lot less then that. I walked some yesterday, and had a ton of errands to do on a non-housebound day and my stage IV Lipedema kicked my butt and gave me horrible pain–I swell up terrible from exertion and could barely walk by the end of the day with severe pain. Everyday for me is forcing myself to get through in pain. There are women with high stage Lipedema who end up in nursing homes and wheelchair bound through no fault of their own. The whole exercise and lose weight thing gets subverted on it’s head with this severe disorder. This is a trap I would not wish on my worse enemy. Lipo-lymphedema means all exertion makes my body swell up with fluid.

I believe Whitney Thore has some horrible physical endocrine or other condition, with PCOS can come androgen and other disorders. I don’t know what she eats, but it seems her love for movement and exercise would be taking weight off.

My concern about Ragen is this whole “fat and healthy” thing at all costs. The whole “Im going to compete in a triatholon” bothers me! She’s trying to prove something that is simply not true.

I am looking into joining a gym for the medically fragile hopefully finances will not be a barrier and even there I fear more swelling and bad outcomes but I try. I have done physical therapy to even KEEP walking and yesterday some woman came up to me in shock I can even walk, I was walking through an Aldis I didn’t use to be able to walk in, being told, WOW I am glad you are so brave to keep going. LOL Lady you don’t know the half of the story. She was nice so I don’t blame her.

I wish the fat logic and healthy thin crowd would understand that not all bodies work the same, and many of us have tried to exercise and eat healthy with no where near the same results. The promise of CICO is failing many of us but we just get called liars. Perhaps some of you should ask why are people like Whitney Thore and Ragen holding so much weight on with their desire to exercise all the time?

and I wish that the fat and “I want to walk 5 miles” and prove I’m just like thin people crowd, would get a clue too. Weight does slow people down. I have taken issue with the likes of Marilyn Wann for years. They can’t claim the fat is NOT holding them back. It’s not reality. There is also the healthism and the underlying message that the only good fatty is the one who can walk in triatholons and who will push themselves until they drop like Whitney Thore. My lungs went before I got fat too.

http://fivehundredpoundpeeps.blogspot.in/2011/01/health-at-any-size-and-healthism-in.html


CICO BELIEVER: The “promise of CICO” isn’t failing you. You are. Eating less would help your finances, as well as whatever conditions you have. If you can’t affect the calories out then affect the CALORIES IN.

Frankly I don’t care how hard it is for you to put less food in your mouth, do it.


ME: 

I did, it’s not working.

You all adhere to that like a religion. Look at those women, one even danced until she collapsed and ended up in the hospital. They are still fat. Why isn’t the exercise burning any of the fat off? Even if they “overeat” and I don’t know what either eat, shouldn’t it be HELPING the CICO equation?

” Perhaps some of you should ask why are people like Whitney Thore and Ragen holding so much weight on with their desire to exercise all the time? ”

——-

ANOTHER CICO BELIEVER:

Well, for people like Ragen and Whitney it’s because they are both liars and don’t exercise *nearly* as much as they claim. Whitney was a normal weight until her mom stopped cooking her meals. PCOS doesn’t cause that much weight gain, and it also doesn’t cause her to eat a bucket of ice cream as she did on the show. Ragen is just pathological.

It’s true that there are many reasons why people gain weight, or find it hard or impossible to lose it. And yes, that is often overlooked by the fit crowd, especially if they young and healthy themselves. It is frustrating, I get that. I have severe upper back problems myself and it limits everything I do in life, including exercise.

But the reality is that it’s people like Whitney and Ragen and the HAES crowd that are making it difficult for people who do actually have something physically limiting them. They are so loud and so obnoxious that they are warping the whole size acceptance discourse into a fight between fat and fit, with nothing in between and no nuances left. That’s the real shame.

CICO BELIEVER:
Other than those with Prader-Willi or some other mental incompetence there is no reason any person cannot lose weight. Eating less is not some sort of “journey”. It’s something you do because you realize it would be beneficial and then you just do.

These people are phonies but people who believe that they can’t lose weight aren’t any less delusional.

ME:
Sure [I meant to write some here] people can lose weight but keeping it off is another matter. I’m more then 200 down from my peak and have been for over 10 years but I’m still fat. Who would choose to be fat? You act like everyone’s body is the SAME.

ME:
That seems like an extraordinary weight gain just from having someone not cooking for you anymore. When she was a teen, wasn’t she out with friends or buying things in the school cafeteria? Wouldn't she have an eating disorder making her fat if that was her real problem by her teens? PCOS does cause massive weight gains in it’s more severe forms like Hair-An syndrome. She may need androgen blockers, thyroid pills and a full hormonal workup. I have PCOS, [many women with Lipedema can have multiple hormonal disorders including two thyroid disorders in my case]. I hope she isn’t pigging out on camera, I see a show here or there, but none showed eating except once which was some gross banana sandwich. Didn’t she live at home eating the same meals as her thinner parents?

There’s many people failing to lose weight in USA society, 60 percent of the populace. It’s getting worse too and while I have a “rare fat disorder” which Lipedema is in this stage, something more is going on with everyone. I see people getting fatter and see more people at my super-size, when I was a rare bird in the 1990s.. I think the problem is bigger then everyone failing in personal responsibility. I don’t like the HAES crowd for their denial but I am sick of people calling fat people liars and devaluing their experiences like look how [CICO BELIEVER] clings to his ideology like a religion, you lazy fatties can all lose weight. Between two sides, everyone gets fatter and sicker. You are right about the nuances being lost.

Telling people eat less is failing. These women are failing to lose weight even with shown displays of extreme exercise. Something more is going on. Even if Whitney and Ragen ate a lot, shouldn’t all the exercise at least be holding some of the degree of weight gain at bay? Do you believe they are making up the activity levels?

ANOTHER COMMENTER:

Yes they are lying about their activity levels . Whitney may feel she is burning a lot of calories that doesnt make it true.

Ragen is purposely lying as evidenced right here. She did not complete a 5k, she cheated. Intentionally. With the help of another fat person who claims to be active.

Both are still consuming enough calories to remain fat, regardless of the accuracies of their activity levels.

ME:
Dee why is the response to fat people always that they are lying? You have no proof of what they eat or don’t eat. I see two women who seem overly focused on doing activities usually restricted to the thin and healthy, surely this is bringing more burning of calories then sitting at home on the couch. If one cheated, and I don’t know if she did or not, then it sounds like she knew she was in over her head. So what’s happening? Perhaps CICO isn’t as firm of a foundation as you think.

There is some major irony to me here. Fat activists want to be like everyone else, go and try and exercise doing running events and others usually limited to the thin and healthy but at the very least midsized or under people in very good shape.  I am all for people exercising as much as they can and with balance but here we see a tip of the scale to trying to prove themselves at any cost to prove success in athleticism.  There seems an extreme push among some of these size activists to prove they can do everything the same thin people can. The reality is they hit endless walls of physical limitations from their obesity. We see those limitations on Whitney Thore's show in full view.

Exercise is supposed to burn calories. They are trying. For some reason, the above exercise is not having the same effect on their bodies in burning calories. Ragen's blog is full of endless stories of exercise, bicycle riding, marathons, this is not someone who did one walk in a year. She got in the public eye for DANCING. She speaks of training for iron mans and more. Same for Whitney Thore, she's active almost in every show I've seen. She got famous for being a DANCER which takes practice and above exercise. They are both still fat. Whitney is entering the supersizes at around 360lbs and Ragen, I believe is still midsized in the upper 200s, though I see some weight changes in her pictures.

Calling fat people liars who obviously are ATTEMPTING exercise, seems a bit dishonest. I worry about the fact fat activists are so into trying to prove to the world their bodies are just like everyone else and the false myth that fat bodies especially over a certain size range are "healthy" in the same way and I worry about the CICO believers, who just yell at all fat people even ones dedicated to extreme exercise as all being LIARS. Our society is so screwed up. The religion of CICO and ideology of extreme size acceptance collide! 

Monday, September 16, 2013

Aspergers and Me



List of Female Asperger Traits

This one may come as a shock to some but not to others. I've hinted at it massively on this blog, but when I was in my early 30s, a therapist told me she believed I had mild Aspergers,  it blew open the door to understanding many things.

This would be backed up by another therapist even a few years later as well as medical professionals who agreed with the diagnosis. Some Aspies do not get an official diagnosis and in the Asperger community, this is somewhat controversial but especially for those slip through the cracks as children obtaining a diagnosis can be expensive. My therapist tried to make it more "official" but since I was already on disability the expense was not approved.  Since then, another therapist has backed up me having Aspergers and it's become a known fact on medical records. There are those in the Aspie/autistic community who have had to depend on self diagnosis as adults without the involvement of the professionals.

Other Aspies are totally self diagnosed after seeking answers as to why they were so different from their peers, and now information online  has increased. I have been part of Aspergers communities online, including one message board where I was there for almost 10 years and have several now real world but long distance Aspie friends. Some of these friends are officially diagnosed by psychiatrists--this testing costs several thousand dollars, some "diagnosed" by therapists like me and some self-diagnosed as adults. With these friends, we do relate deeply on many things including what we faced as young people.

It is known that this is a whole other ballgame then severe autism, I understand that, I even used to substitute teach in special ed classrooms where there were autistic children who were totally non-verbal. Aspergers is by far a paler cousin of the spectrum where one is verbal but has problems with social cues, and social ackwardness. Even when young I was referred to as the "absent minded professor", and did things like reading World Book Encyclopedia for fun.

In my case, I would be considered high functioning and on the MILD end of the Austistic/Asperger spectrum, but it definitely had life impacts. For some time, I battled about even exposing this, but then I think on this blog, I have discussed everything else about, and on my own social website under my real name, "the secret" so to speak is OUT so why hedge so much about it here?

This book was like the story of my life:
I supposed I didn't want people to use this as an excuse to dismiss my words, and my studies here, if anything Aspergers can give on the talent to see things in a new way. There is major stigma that can come for Aspies and there are websites out there where they mock Aspies as all a bunch of fat nerds, making "excuses" for why they do not fit into society. I don't care, all I know is this helped answer a few questions of why and how I was different. One thing I am not a fan fiction sort, I hate science fiction, so be careful of even letting Aspergers characterize me or picture stereotypes here that are far too rampant. There is a wide difference between a full autistic, stereotypes like Rainman, and even between individual Aspies themselves. One thing I want to add too is that Aspergers shows itself far different in girls then in boys, and the Asperger professionals have written about how many girls with Aspergers have not been diagnosed though this is changing.

Part of me has questioned the Asperger label wondering if thoughtful, quiet, book focused people used to be more the "norm" maybe back in the 19th century when character counted more and the narcissists weren't the top dogs being rewarded by society held back a bit, with their propensity for deception and lies held back a bit by stronger social ties.

There are many Aspies now undiagnosed and diagnosed who are part of academia and other areas in society where their different way of thinking is considered an asset. Aspergers can bring talents. It is a known fact that many Aspies flock into academia. 

I seemed to have odd talents mixed with deficients. For instance I can read about 10 books a week, and speed read with ease. I can remember things that I read even years later. Patterns are easy to discern, and my level of "booksmarts" always seemed high. In childhood and later, my IQ tested very high . However with this came other problems, some "holes" as it were, problems doing math, executive function, social cues, problems understanding verbal instructions even before my hearing loss.

Today Aspergers affects my life still, aging is different for those with Aspergers. Many things that come simple for ordinary people do not come simple to me. Later I will discuss such things as executive function and the rest, but one moment hit me hard, this weekend, using a library computer to print pages for a volunteer presentation, I lost the slip of paper that had my assigned computer password and name on it, forgetting that I needed to enter it into the computer hooked to the printer. Such gaffes impact my life all the time. Thankfully the librarians were kind about this and know me enough to tolerate my quirks well. Life seems overwhelming to me, and things that come easy for most do not come easy to me.

One aspect of Aspergers is the world can pass by as a confusing overstimulating mess. My levels of anxiety were high especially growing up. Hey with the kind of parents I had, I had to act "normal" or risk being smacked. Aspies can suffer from higher levels of depression and anxiety. 

As a child I was very quiet, and teachers knew something was very different,  while I could get a friend here and there, the social problems made things very tough. I did not fight or act out but was ostracized by other children. The teachers noticed I could read adult books by the age of 6 but that I was not being included by the other children. That combined with the kind of upbringing I had worsened things for me. As for my parents and family's treatment of me, I was quiet and not a troublemaker, and even if I was a bit different or quirky it does not excuse how I was treated and it was wrong.  Add in the fat kid bullying and well, it wasn't a pretty picture.

However with good grades and quiet behavior, I slid through the cracks. Of course 30 years ago little was known about Aspergers but many of my problems were ignored by my parents and I was in the private Catholic school system where there was far less special education resources and education. The nuns who were my teachers, were pleased enough I was quiet and got my homework done. The sad thing is my parents just shunted me aside even ignoring aspects of OCD and tics that I displayed.

One thing about Aspergers is that there is a connection between autoimmune disease and food allergies. Given that I am diagnosed with autoimmune conditions that makes sense. Autistic leanings often are part of Prader Willi- and Fragile X, now do you understand why I want some of that genetic testing being trapped in this body? Why was I so tall so young and a foot taller then all other kindergartners in my class? Learning that 9 out of 10 women with Aspergers suffer from IBS was also interesting to me.

My qualities of being a "deep thinker" which was not welcomed in my family, and others actually singled me out more among the non-readers I was related to. Most of my family were extreme neurotypicals including my mother though one of my friends theorizes that my father was an Aspie since he was an extreme computer genius with a tested IQ of 140.  They say that Silicon Valley is full of Aspies, and yes there are many who are talented in computers and my father was one. My father also displayed many of the same negative non-Aspie personality attributes as my mother though I would say she ran the show and he was her enabler. Her word was law, and I was chopped liver.

While I have some intellectual talents, sadly computers and math were not among them, though if I can go into a certain mode of thought, I can fix a computer sometimes and one friend found it odd, that I manually went into a computer registry and removed files from a virus. She said, "How could you tell what was a false file?", I said "By the patterns". She found this odd.

With my father being a would be Aspie, I tend to disagree with this, since he was so high functioning socially and had a very good job. In other words many Aspies do struggle with making a living and functioning in society. As if I didn't have enough challenges outside my weight and upbringing? The Aspergirl book, went into how hard it is for Aspies to fit into the workplace, and while I was disabled for my physical problems, I remember the office politics bowling me over and driving me crazy. I could keep jobs pre-disability, but my stress levels were very high.

I have a running theory about Aspergers and weight, one thing I have noticed is there does seem to be a sub-set of people with Aspergers who are very obese. What is going on with that? I met a man who is over 500lbs in my community at a disability group, who told me he is a fellow Aspie and I could tell he was a bit more on the severe side of the spectrum. I wish they would study that. I am researching it myself now. This article says children with Aspergers are taller and heavier then their peers, I definitely was.

I do have a nephew who is diagnosed H.F.A. [high functioning autism] the half way point between Aspergers and full blown autism. I did disclose my mild Aspergers to a few relatives, who agreed with it but it did not change any of the abuse or their attitudes towards me.  But even there the causes of autism or Aspergers are controversial. I muse about the refrigerator mother old school theories about autism and Aspergers given how I was raised.  In my opinion, Autism and Aspergers are multi-faceted probably with different causes for different people. One thing they do know is the rates of it are skyrocketing.

One thing with Aspergers, Aspies do have empathy. That is one claim that angers me when people try and claim Aspies have none. We have it. Aspie females often feel deeply if anything. My life has been one of repressing my emotions around non-understanding neurotypicals, to "fit in", not being a female Spock.

I plan to write more about Aspergers on this blog too. Yes I know, a 500lb Aspie, who would expect it?