Here's some UNWANTED diet advice I got on a Lipedemia/Dercum's Health board I'll leave unnamed. I'm staying away from these places now because as I struggle with this body, the last thing I need is more of the same blame and shame nonsense. I am in pain today too and fearful of weight gains--it may have been fluids from being extra busy for about a week, so this was the last thing I was in the mood for. Some of the diet advice seems to contradict. Do you all notice this too?
Well, I feel that I have to answer this point. I too, have dieted all my life and exercised until pure physical exhaustion. But, I have dieted properly and with no luck at all. But arriving on a new page, where there are plenty of people in the same situation, and who have actually arrived at a solution to that very problem, I would feel that it was a good thing to look at. Your weight and health problems will never go away by ignoring them and it takes a constant and healthy approach to dieting to lose any weight at all.
I too, was really astonished by this method of losing weight, as it goes against all my training as a Nurse, but it works and so many people have been here to witness that it works. What is killing us all is sugar. And all the carbohydrates full of chemicals in them........... We all need to eat what is best for our condition. At 400lbs, you need to lose weight and I would suggest that you take the time to look and even try that way of eating to see if it helps you rather than somewhat rejecting the solution before even reading about it.
I pass for 400lbs in my photographs. Guess that's a benefit. I always weighed around 100 more then I look.
Maybe some of them should take up jobs for Atkins and join Marie Osmond and pals...[maybe I have the wrong star]
On all of these pages, we all discuss diets, what works for one, will not necessarily work for another. But we always talk about them. If you refuse to even listen to those who have lost 100 lbs and more, that is being silly.
This is the first diet I have seen in more than thirty years which has worked for morbidly obese people, so it works. Obviously if you have tried all the dieting fads over the years, then you have not really been dieting and eating healthily. Losing weight entails a change of life choices and if you are not willing to make those choices, then you will just stay the way you are.
If diets worked would there be any fat people around? Isn't that same promise made with every new diet?
I sometimes wonder if they have diet and status quo types on rare obesity condition boards, the status quo cannot afford to have the diets questioned, or that there are people gaining hundreds of pounds from medical conditions. The reality of Lipedema and Dercum's alone turns their obesity lies on their head, so what better then telling the "medical condition" cases to shut up and diet! These types give the same answers as the last 40 years. How do you say to a person who lost 250lbs at one point even if most of it was medically oriented, "You don't know how to lose weight?"
Nobody is shaming you so please do not start feeling sorry for yourself. Here, we have all been on diets and heard doctors tell us that it is all our fault...... I have heard it now for fifty five years and it still happens today. But with diabetes, you need to be extra careful about your diet and complex carbs are very good. Atkins is not LCHF and vice versa...... There are many things to be taken into account and it really does depend on life choices.
Doctors do not understand that our Adipose Disorders do not react to the same diets as they want us all on....... BUT WE DO!! We have all been there with you!!! You sound so determined to remain in your own little world of no changes, no help from others like you...... it is a real shame and I feel very sorry that you do not want advice, because we all came here for advice and thank goodness that some people have made all this information available due to their own experience and hard work. You really need to get a hold of this problem and listen to what has really helped others in the same situation.......They are not doctors but if they have lost 200 lbs, they are doing Something right.
Until she suggested a lymphedema specialist, there was no new advice outside of GO DIET and eat NO CARBS and ATKINS advice. Atkins was disproven 25 years ago. I attempted Atkins in the 1990s and one time later. Yes diabetics and women with PCOS have to keep away from sugars, simple carbs and white flour. Healthy fats are good. I was new to the board so she knew nothing of a "world of no change". I was judged simply on size alone. Are some of these people getting kick-backs from the diet companies? One other person advertised direct links there.
I know exactly what you are saying, but you are not listening to me. On this page especially, we all talk about the different ways we have circumvented the doctors who repeat non stop that we need to lose weight. I heard it again last week!! I have Dercum's Disease and have had it for fifty odd years, so tell me about the lipomas growing out of control, I am an expert!! But to get a handle on our health problems you still need to address eating, whatever it is you choose to eat. Dercum's Disease does make you put on weight, there is no doubt, but once you find a diet which allows you to remain at what I would call "your average DD weight", you do not really go up or down, no matter what you eat. If you say that you can lose 50 lbs this week then it is all fluid, it is not fat. You need to see a Lymphoedema Specialist. Nobody in this world loses fat at that rate - never!
I feel for any high stage Lipedema/Dercum's people going to any of these boards. The fat shaming and extreme diet talk are never ending. Some people on the board did defend me. The woman who shouted me down looked like she weighed around 150lbs. She never has been super-sized from what I can tell and is obviously a far lower stage person without the affects of Lipo-lymphedema.
There are women like me and even in worse shape who are bedbound and who can't walk at all. If these boards are that awful to semi-mobile me, how bad would they be to someone like that?
I'm tired of judgmental jerks.
The "eat their own" health boards suck where the low stages and successful dieters beat up on the high stage people and those of us who struggle in weight loss despite our healthy eating are a nightmare. Getting away from the narcissists I'm done making excuses just for existing, and well, it's the same with this body now too. Their diets failed me. Of course they will tell me "Oh you didn't try hard enough" and other nonsense. Well I will be avoiding these places. They are triggering. Some support boards can work but they are few and far between. These are diseases that will remain in the pit under the diet industry juggernaut.
People with Lipedema and Dercums often go undiagnosed for years like me when they were told to go "diet" for their growing legs, lobes and lipomas. Hearing this same garbage [I have nothing against healthy eating discussions] is abysmal. These women are actually working against true treatment of these diseases with their diet industry brainwashing and dreams.
The False Shame of Fat Women Affects Lipedema
Warning...watch out for support boards on Facebook, there's a few good ones, but it seems many of the ACON boards were run by narcissists and the Lipedema ones run by Diet-Dealers. In the other article I wrote about women bragging about weight loss and eating 500 calories 4 days a week.