Wednesday, July 30, 2014
How Lippy Life Differs From Normal Fat Life
I am referring to people with lipedema as lippys. This article applies to those in the more severe stages III and IV. Yes meeting other people like me online was a relief weighed with emotion. I finally met people who LOOKED like me body wise. That never had happened before.
1. Diets don't work on lippys. Of course you want to get as much "fat" weight off as possible but hundreds of pounds of us are fluids in serious cases. The Fat cells are even altered themselves.
2. When a lippy sits up, their bottom half fills with fluids. The lymphatic system is severely affected. In my case there is a two hour time limit on sitting up as well as a danger of pressure sores which in my case are aggravated by the condition. This means my legs [unwrapped but they are always wrapped or compressed now] and lower stomach grows VISIBLY. This was remarked on in my medical records when an at home physical therapist noticed this process especially during exercise.
3. Your legs hurt all the time. Many doctors tell you it is because you are fat and have too much weight on you but it goes beyond that. The more you walk, the more they hurt, the more you swell. Which by the way is something alone that can push a lipedemic into more inactivity. Being a severe lipedema means feeling pain somewhere each and every day. I'm a person that can tune out pain, remember I'm the woman who toughed out kidney stones at home, but that has limits, it takes a toll. There are days where I am far more inactive not out of being "lazy" but just to ease pain.
4. Your mobility is affected. Many severe lippy's do need wheelchairs, walkers or canes and other mobility devices. The weight distribution and if you have lipo-lymphedema which puts even more weight on you via the comorbidity of lymphedema coming to join the lipedema party, means it is harder to walk. Before my legs were compressed, I did have serious worries about my more severe leg destroying my mobility. One thing we need to watch too is making sure my thighs do not grow.
5. Lippy's have the ultimate "pear" shape, which means usually thinner on top. If the right picture is taken, I can be cut off at the waist and look like a much thinner person. Even before I had my weight gain, the hips and butt area were far far larger then my waist. When I lose any weight it goes off my face and neck area first. In fact in photographs depending on my level of fluids, I have a far thinner face some days then others.
6. Lippy's often have severe food allergies. Lippys get sick from beef and a variety of other foods. I have a problem digesting meat and have to be very careful even eating a steak.
7. Lippy's often are hypothyroid, or have other hormonal problems such as PCOS.
8. Lippy's often know by a young age that they are "different" and their bodies and legs do not look the same. Often lipedema comes on in puberty but some women it is later in life with menopause.
9. Severe weight gains like I had with the 400lb weight gain, are not unknown in lipedemics.
10. Lipedema is genetic.
11. Lippy's often have lipomas and hard and other nodules of fat.