Tuesday, December 13, 2016
Flu From Hell and Endless Tongue Sores
I've been really sick again. The fatigue is killing me. Life for me has become nothing but sleep and time on the Internet.
This flu from hell came to get me. Dry heaves, regular puking, sneezing, congestion, horrible indigestion, and exhaustion formed the extent of the last two weeks. I almost went to the hospital one day because the combination of severe mouth sores and the rest were sending me over the bend. The on-call doctor sent me some Diflucan and Lidocaine for the mouth pain so I stayed home.
Outside time online in bed, all I am doing is sleeping. My sleep is around 14 hours a day. I may have to ask for a mono test or something. My sugars have kind of sucked being from 140-129 on average lately for fasting but not bad enough to explain what is going on. I am eating some soft foods like cottage cheese and eggs. I've cut all spicy, hard or tomatoey foods from the diet. I haven't left my apartment since Dec 3rd. On top of everything our very warm fall turned into a freezing winter so I am completely housebound.
Sometimes I don't know what to do. The thrush or "tongue sores" or whatever it is, is out of control. I have tried yogurt and kefir for probotics. I was on both Nystatin and Difuclan last week, and my mouth feels like someone lit a match in there and burned it. No medicines are working. There are sores on the back of my tongue that swelled up during the worse of it, where I felt like I had blisters on the back of my throat where the tongue is and tongue. The sores hurt all the time. Oddly strong doses of Nyquil seemed to cut down their pain the most. I even have wondered about allergies because Nyquil has killed some of the tongue pain but it is not swelling as huge as anaphylatic shock would do and I have no hives or other signs.
The sores are still there, and still hurt but they don't seem to go away. Before I got this flu, because my mouth hurt all the time and these sores were there, I had the dentist do a cancer screen. Maybe they didn't see the sores on the back of the tongue but they said something about me grinding my teeth and said their light test did not show any cancer. The sores don't seem to be healing and seem to be getting worse.
I would think cancer except they swell up and go down sometimes. Cancer doesn't "get better" then worse and back and forth. My tongue in the front always has these horrible ridges on it, it's swelling and pushing against my teeth. It is "scalloped" to the max. It goes from pale white looking to cherry red. What kind of specialist would deal with this?
It hurts all the time. Sometimes I get so sick of this body. I have failed to lose any more weight, I don't know what I weigh right now, when I am in bed for days I ironically "lighten" up because a bunch of water weight comes off. My health just seems to get worse and worse. I know some major financial and other stress sent me got me sick. My husband had bad gout, an office worker erased all my medical benefits with an error that took me hours and worry to fix. I just wanted to be able to relax. I'm tired of having to worry about this stupid body.
One thing I haven't talked about but is an on going worsening problem is that my fatigue has worsened. I feel tired all the time. I have constant guilt thinking I need to do this and that and need to "get my life together" when really all I want to do is sleep. I put everything off even things I enjoy lately. Somehow the doctors need to take this serious. It is getting in the way of things really badly. There's times I will just sit down on the couch even while watching TV or trying to do art work, and just feel frozen, putting my head back talking myself out of going back to bed to go back to sleep.
I have to "make" myself do everything. Even when I had my art class during the fall, I would use my energy up for that and then go collapse into bed. I feel like going to back to sleep now at 10:20 am. Around noon I am sure I will drag myself into the shower, and maybe do a few dishes. It's not much of a life. I was told my thyroid scores were normal on 300 mgs of Synthroid a day, and I already get monthly B-12 shot from the at home doctors.
As far as the mouth goes, I get constant teeth-cleaning, and brush my teeth 3-4 times a day and do at least one Water-Piking a day. It hurts a lot. Any advice is welcome. I hope I don't have tongue cancer or something else weird. It could be even something autoimmune creating this problem.
The "flu" or virus from hell is almost gone but fatigue and some coughing is still there. I'll have the doctor look at my tongue, and figure that out. I don't think it is "thrush" anymore and even if it is, something is severely wrong with my immune system.