The False Shame of Fat Women Affects Lipedema

                                    a picture of my leg wrappings after I took them off.

I  recently got in trouble for "fat shaming" someone on a Lipedema health support board I won't mention the name of here.

Funny thing judging by this someone's wall on Facebook, they looked like they were a size 10-12 with no health problems and these were pictures over a series of YEARS.  Every other post on their very public wall, was an advertisement for the organization they did sales for, and I asked people several times to go look at these public photos but I guess no one did because they did not believe me. The diet they were bringing up was actually one sponsored by the organization they did sales for.

 I don't think I understand all the rules of political correctness. I thought they were a sales-person coming on a health support board and warned people. Aspie honesty got me  hated by some in a group of neurotypicals.  Later I was banned. Well I was made out to be the "bad" person, even though this new poster included "selling a diet" that had Beach Bodies in the name, and I thought some people believed the same way I did about diets, espousing basic size acceptance principles but I guess not. I was the "meanie" for trying to warn of someone I thought was an imposter. They called me a "fat-shamer".

It's weird to be 500lbs and told I am a "fat-shamer" for someone far smaller and functional then me. Can someone explain that one to me? The liberal world bugs me too just as much as the conservative world and all their "go die in the ditch", "pick a job off a tree" Tea Partiers. The speech controls and endless impossible rules are too much.

Yes I'm a big meanie. The Lipedema world has gotten to be a tough one or me. Some still believe in diets and the fantasy of weight loss. It's weird since all the medical literature rightly says this is not weight that can NOT be taken off by dieting. If anything dieting messes up Lipedema more and sinks your metabolism. Many severe Lippys like me have nutritional deficients. Dieting is a joke to me. I got doctors to finally believe me and got diagnosed. Yesterday I had eggs for breakfast, sandwich, and some broccoli slaw for lunch, and rice and chicken with broccoli for dinner. I am not eating that bad. My blood sugar was 122 this morning. So to be told, that I can fix my body with the "perfect diet" is a dream. Yes I have to watch WHAT I eat, but the dream world of  having a body that functions like everyone else died long ago for me. Thinking a diet will fix this is the definition of insanity.

My own body is full of Lipomas and fluid. I see constant weight changes now dependent on how active I've been and how much I've peed off and every night shrink a bit from Flexitouch treatments.  The hormonal crap foisted on me by Lipedema has affected my life far more. In fact I believe much of the research for Lipedema is being ruined because the focus is on weight loss, diets and liposuctions and not the internal health, and endocrine realities of this disease. Because it is a WOMAN'S disease primarily all it seems is cared about is LOOKS, LOOKS, LOOKS. 

Google Plastic Surgery and Lipedema, or Lipedema and Beauty and you will get a look-see at what I am talking about.

Even the liposuction stuff seems unproven to me. What's going to keep the fat in the legs from coming back? The plastic surgeons are setting up for a new market, and on Lipedema boards for early stage women, one can see the model thin, on there who seem to care most about having sculpted legs showing up who complain of having Lipedema and it makes one wonder. Their reality bears no resemblance to my own hell of Lipo-Lymphedema. I believe that the "worried well" market is the focus in the Lipedema world, where the plastic surgeons are diagnosing otherwise thin and healthy woman with Lipedema to do leg sculpting. There are some who seek out the liposuction who are higher stage and who do truly have the condition and some sincere doctors like one in Germany who see it as a break-through but I remain concerned about how so many of the  main treatments for Lipedema all focus on the removal of fat and "being made thin" instead of the root endocrine and lymphatic causes.

In my case,  I renounced the beauty prison and yes this has been mentioned on this blog but the "beauty prison" seems to be running a lot of the Lipedema world. In a disease that has hurt me, brought me endless pain and destroyed my life on a multiple levels including almost dying of sepsis [leg infections that poisoned my blood] how do you think I feel about this development that the main focus for Lipedemics is to be BEAUTY and LOOKS and doing away with the FAT, and becoming THIN?

I have to admit I was disappointed by the people touting size acceptance beliefs contradicting themselves allowing the discussion of another failed diet to be sold to wealthier women who can afford trips to a giant theme park. It was unjust and unfair for "Beach Bodies" to be advanced among many women who have weighed 400lbs-700lbs from a disease we had no control over. Haven't we suffered enough? This was a contradiction to the max. It felt like a middle finger in my face. Of course I was the one being "too sensitive" for refusing the mainstream cultural mandates.

 I believe one neglected avenue of Lipedema is the psychological and emotional. We are being hurt, by the constant diet talk and the non-answers being sold us. We are told that the shape of our body is the thing most wrong with us and that must be corrected no matter what. While there are good medical professionals dealing with the lymphatic system and MLDs and others out there to help us, the beauty imperatives and prejudice against fat is influencing treatment of a disease in a very negative fashion. Many Lipedema women are reporting that some doctors are pushing weight loss surgery and weight loss as the first thing they "must do" instead of dealing with their failed lymphatic systems. There is a weird focus on "non Lipedema fat". How do they know what's fluid or fat or not?

We are shamed for our bodies constantly and some eat the shame, still acting like it is their fault, and they must all conform to societies impossible demands and still "live in the dream" of thinness one day being theirs. I suppose this is why I got banned from the health board. I am too radical for them and a "trouble-maker" because I got a big mouth and I have written against the diet industrial complex for 5 years on this blog. I have pissed off the size acceptance side out there by exposing their "normalization of obesity" and  health "denials" about severe obesity and I have pissed off others by calling out the "diet industry" as completely harmful to our health. My life values are in opposition to those who want perfect clone bodies among humanity, and who sell conformist "beauty" as the highest ideal above all.

 I threatened the "dream" and even some of the denizens of size acceptance will show their true colors when pressed. They don't want to give the "thin dreams" up and no matter their size support the cultural imperatives, that put thinness and the status of the thin above real treatment and research for a severe medical condition. Maybe if they got to the root of the problem, there'd be far less people struggling with severe obesity.

It reminded me of the Lipedema spokes person who got honored by a top obesity organization with several weight loss surgeons on the board that I wrote about before without naming names.

All the focus is still on the fat and the looks of a body and the SYMPTOMS of a disease instead of the inherent disease process within. Cultural mandates of shame among the fat, affecting treatment of Lipedema. The diet industry is a negative influence on Lipedema and Lipedema treatment. I stand by this belief whether they like it or not.