It seems to be clearing up but the sore is still there.
I am so tired. I have been in bed, though my husband took me down to the beach and I got out of the car today since it cooled down. I have to move around some or I lose stamina FAST. I did not feel ready for a normal walk yet but will have to do one tomorrow even if it's inside here. The beach was very pleasant, very few people were around. I watched some boats go by and basically zoned out while sitting on a bench.
My immune system seems to be toast. I told the nurse, I plan to go to an infectious disease doctor. I did find one locally but plan to call him later when I am less housebound and over this. Maybe it's the stress, I've had a lot of emotional turmoil lately, regarding where life is going. Having sores bust out from the inside does not bode well for the state of my health. I spent years in panic of the red spots that meant cellulitis, now are non-chafing bulleye boils going to join the party to torture me?
The clock is always ticking and never leaves me alone. Like even now I am thinking you have to get up and make dinner, you have to wash some shorts in the sink to wear for tomorrow and make sure you have a clean dress. I'll do these things but is it normal to have to force yourself to do everything?
No it's not normal. I was like that when my lyme was most severe. Lyme is an infection. Maybe you do have one. I couldn't get out of bed to put in a video. But your mind still does tend to want to do things. It took years to get help. And it came so late I'm still always tired and in bed.So I'm worse than most people , but better than I was. But where you are seriously does do a number on your head. It is hard to be really sick. It is really hard. Like a full time job..Or Job!Lol!
ReplyDeleteGood luck! Hope you get the help you need. A lot of people do believe you, so don't let anybody make you feel you are malingering.
Sorry you got so tired too. One thing I need to do is look at my labs, I had access but then the password stopped working. I need to check on a few things, but may new tests. My thyroid is at an okay level from what he told me so thats not it. How did you get diagnosed with Lyme. I don't think I have that one of course. So sorry it took you years to get help. Why do doctors always have as their default not believing people. I am going to tell this guy when I told you during two appointments, "I am so tired" it means something. It is like a job or JOB, LOL. Thanks for believing me. Maybe I should keep a diary of a week of what I do and how tired I get. I did get up to make dinner but chopped vegetables and with meat, and threw it in oven to bake because I didn't want to stand over it. :p I'm in my Flexitouch now. Multi-tasking while in bed. The right leg, being done I can lean to the right a little and type. I still have to wash the shorts, and take another pill. I did the major pills and insulin before laying down. You know I used to think "OH I'm fat that's why these doctors think I am lazy and a malingerer but sometimes I think they are treating everyone like this now. It's crazy isn't it? Some guy on my Facebook page wrote they want more business so want you sicker. Sheesh.
DeleteI think they treat a lot of people this way. Some of it might be they are told not to give antibiotics because of supposed overuse. The other thing I heard is that insurance companies will encourage them to order some test over others depending on expense. They also see so many sick people every week it must be overwhelming. I couldn't take being around so many sick people and I'm sick!Some of them are just jerks.I had a great doctor years ago that said she didn't believe in hypochondria. She was very compassionate. I miss her. But even she missed my diagnosis. She even apologized to me for missing that I had h. pylori that was causing me an ulcer. I went through 3 years of agony with that. I had to bring her an article from a magazine that my husband found about it. Then she tested me. At least she was sorry. I think doctors just don't know as much as we think. With the internet we can get a little education and they hate that. It's an ego thing.
ReplyDeleteEven when I was a kid 40 years ago, I remember our doctor sending our neighbor home with a heart attack. He could have died. I think my parents changed doctors after that.
I have tried keeping a diary, but it usually fizzles out as soon as I'm not in a really bad way. So be aware of that. It is probably most helpful when your going from the good cycle to the bad.
I got diagnosed with lyme from a lyme test! Shocker huh!But when I got the IV it was more intensive than that.
I also notice that when I go to my doctors office I tend to feel a little better. I couldn't figure this out for years. He is in the boonies. And one day I realized you couldn't get a cell signal where he was. So it kind of confirmed that I am elf sensitive at least some. If I accidentally leave my cell phone on I can't sleep.
Tests can also vary for different reasons.
Hope you feel better today.
Sorry your doctor missed your diagnosis. I wonder why doctors don't diagnose anymore. What trend in the medical world moved them away from it? Is it fear of being used if they lock down a definite wrong diagnosis? I don't know. They all seem skittish as cats in trying to diagnosed or get the core root of anything. It's even more obvious now in the days of the Internet. I am tried of having to "convince" them of every little thing. Something is wrong with the way they operate. It needs changed. Ugh about your neighbor. Maybe they do get burned out seeing so many sick people or get so closed down to death, that even a seriously ill person doesn't matter to them. wow with you getting diagnosed with lyme that way. Some people are elf sensitive. I was wary of putting wifi on in here but the whole apt building is bombarded with it anyhow though there's some protection in the fact this place has thick walls. My Obama phone doesn't work inside my apartment. This is one reason I had to stick to a landline.
DeleteHi Peep, I hope you will get a check-out for Lyme's disease just in case you have it. You might had bites from some bugs or are dealing with heat stroke. I will pray that you will get a better doctor, with a nurse who knows about lipedema, to check on you so you could find out why you are so tired. It might be stress, heat or some health issues you are not aware of having. I will pray for you.
ReplyDeleteI think all the heat made me sick. We have window air conditioners so I can breathe, but I don't have it artic blasted in here and it does get turned off, so there is a lot of having to cool things down in here. I got tired of sweating and being hot. I discussed the fatigue with the nurse, and husband is going to talk to the doctor. Something has to be done about this. COPD can cause fatigue but don't think that it is. A lot of doctors pooh pooh me saying "Oh you already have fatigue causing conditions but not like this. I know I am getting older now but last few months, getting out of bed has been very hard. I don't think I have lymes, I am never outdoors except to sit on a bench by a beach where things are paved, and even in nature center, I can't walk good enough for the trails and birdwatch from indoors. LOL So I don't think I've had contact with ticks ever. I'm housebound a lot too. I am actually low on Vit D from never being outside.I think heat and stress have affected me. I worry about husband's health too a lot.
DeleteI do know that boils have a special one of a kind type of bacteria, and from my experience, antibiotics doesn't even work on them. And its like I don't even have an immune system either. And my brain has trouble coping too, like always, but especially during those times of infection. I hope you get better soon. I know this is excruciating.
ReplyDeleteThanks Joan. I hope the antibiotic works on this one. I am in bed now. I am walking around a little bit so I don't lose stamina, but the rest of day will be in bed. Yeah sorry your immune system is bad too. My brain can't handle illness, it stinks thanks for understanding.
DeleteWow, I know what you mean. Lately I feel like I'm trying to convince my doctor of every little thing! Well said.
ReplyDeleteMy last doctor would immediately send me to a specialist where they would usually diagnose something. This one just looks at me and shrugs. So it's nice to know it's not just me . But it sucks for all of us chronically ill people.
And I'm not sure I care what the reason is, for there slack treatment!