I know it affected the weight the other day. I've been laying down a lot to take some fluids off though I did walk around at art museums on Saturday to see two art shows and on Friday to run errands and do a few things. When I get this swollen, walking gets a lot harder. My hands and arms even feel heavy and you can see the fluid in my face. For at least two weeks all my pees slowed down to a trickle though a little bit now is coming off since I am laying around like a slug. There's no choice, it's either move and be in pain and swell some more or lay around to get fluids off. When I did Flexitouch last night, there was serious change in the leg, there was so much water on me, it was insane.
It's weird, one half my body says rest don't move get rid of the pain, the other half says "you'll gain weight if you don't move. The two do work against each other. It gets scary because I do start limping a lot when I'm this swollen. Even getting up and walking to the bathroom hurts. At the art museums, I am fine once I get started. If not for the leg wrappings and machine, I would have been in the hospital about 10 times for leg infections with all this heat.
I swear I can feel the water in my brain. The heat has been terrible here. It's been a very hot summer. Not at all like last summer. This week I'm housebound most of the week with it being in the 90s and high humidities. We plan to go grocery shopping tommorow in the morning so I can go to the veggie stand and get some decent food, but hoping it is cool enough. It was smart to push back more appointments into Sept. I'm going to see my MLD [lymphatic therapist] in Sept when I get a prescription signed off. Perhaps she can refer me to some lymphatic doctors. I'm willing to travel to a big city 100 miles away if needbe. I am making the decision I need lymphatic big guns, and specialists. This swelling thing is getting out of hand.
I hope no other lipedemics are suffering from this very hot summer or anyone else for that matter! Thank God for treatment I have gotten. I do believe if I had not gotten diagnosed at time I did, total immobility and the nursing home would have awaited. Lipedema is a progressive illness. I still fight them both but I am trying.