The Lipedema World is Too Caught up With Crazy Diets Instead of Finding a CURE.

I can't stand Lipedema boards anymore on Facebook, it's diet central, and not just your run of a mill Weight Watchers diets. Some of them have now jumped on the bandwagon of Keto gone extreme, there's now a diet, where people eat nothing but meat. It's called the Carnivore Diet.  

Some of the Keto fanatics have decided that carbs are so evil, that they should be done away with entirely. One woman announced to me that vegetables were bad for you. I am so mal-nutritioned, that doctors ordered nursing care for me three months ago, to get to the root, I had to show diet journals, on exactly what I was eating and more. They realized the cause wasn't what I was eating but medical.

I am having serious problems with anemia, that are scary. The anemia could be related to my connective tissue disorder. My red blood cells are often too small. It is coming and going. Sometimes it makes me break out in extreme sweats. I am re-adding some beef to the diet, trying to be cautious, due to the kidney stones. I am low on multiple vitamins. Yesterday's food included a hardboiled egg, some cooked turnips and carrots, pistachios, a peach, one chicken breast, an apple, a turkey sandwich, and some canned soup that had a little bit of spinach and carrots in it so I am attempting to have the diet be variable for nutrition and to hedge my bets on the nutritional and vitamin deficiencies. Today I had eggs and mushrooms and peppers for breakfast and will have cooked cauliflower with onions for a soup at lunch with a sandwich, and probably left over chicken with peppers, tomatoes, probably cooked in some type of burrito dish or casserole.

I think people who think they can be healthy eating all meat are insane. I would be doubled over with the bowels checking out and it would be kidney stone city. I wonder if they will like scurvy? Are they promoting "functional anorexia" in some Lipedema circles so some women in less severe stages won't get so large? It makes me wonder. Fasting, and extreme diets are the name of the game. I find myself thinking, "Oh great, I have a rare fat woman's disease, where everyone just sees fat, and they have no interest in focusing on a real medical cure, they'd rather focus on starving us all so we comply-body wise".

I have given up on diets. Maybe it's size acceptance, maybe I am just too damn physically hungry all the time. Maybe I got sick of it all realizing it didn't work. Maybe I have to eat a certain way to avoid headaches, digestive hell, and to just stay alive.  Maybe it's realizing severe dieting forced me on insulin or that the diabetes WORSENS when I have LESS food. I have noticed my blood sugars are far better when I eat what I want and when I want it--when hungry. Today's was 125. I know I will stay supersized for life. Diets brought me nothing but shame, blame, misery, and depression, and never worked on me anyway.

I don't want to eat some extreme nutso way, to have a normal body. One woman told me Carnevore is not a calorie restricted way of eating and that it was the opposite of starving and high in fat, and would keep hunger away. She told me carbohydrates cause hunger and to include offal to avoid nutritional deficiencies. I am allergic to liver and know that offal creates very high levels of uric acid so found this advice dubious as well. She told me, "We don't need any dietary carbohydrates." [what!!!?]


For my own sanity, I am going to avoid those boards. Too many women only care about how they look, and the judgment on a supersized person in those circles is too immense. They cry over being 210lbs so 500lbs would not be acceptable. Some do lose fat weight but their swollen legs and hips remain. Some are obsessed about weight to a degree that is psychologically harmful especially to someone like myself whose taken multiple decades of abuse over being overweight.  It makes me upset that the central focus is on the fat weight and not on why our lymph systems have failed. It troubles me that there will be no real cure or help for this disease and people will keep dying, and blamed and shamed for "not losing enough weight."


I still go to the gym by the way, was there twice last week and this Saturday, can do 20 minutes on the arm bicycler, am doing the rope pull which I like to build stamina. I like the gym, just wish my overall fatigue was not so bad, to keep up with.

I have given up on weight loss dreams and find it all absurd and depressing. I made it to my 50s which I guess is something since everyone said I would be dead by 35 for being so fat.  I hope I don't gain weight and need to maintain my mobility but there's no way I am going to sign on to any crazy diet that makes me feel like shit all day long.

There's a certain point where people's advice sucks. I wonder what is going on in the Lipedema world that these crazy diets are being advanced and I am disappointed as hell about it all. It often is not a supportive or good psychological place for a supersized woman to be. If I am feeling this way, how many other stage 4 people  are feeling like I do or even worse because they may be immobile or bigger seeing their health communities betray them this way?  I consider it a betrayal, having crazy diets shoved down my throat. Some seem to be true believers too, like their diet will bring the promised land. Well I know how often people push their false promises. If men, had Lipedema except a few rare ones, the answers wouldn't be more diets, more would be done.